Welcome to Matt Pembroke's Personal Page
Please join me and support Cure SMA by making a contribution to my personal fundraising page for the 2016 New Balance Falmouth Road Race.
My personal connection with Cure SMA comes through a very well known young man in the Medfield community, William Johnson. For those of you who do not know William, he is a high school student at Medfield High School who lives with SMA. William and I share a love for sports, specifically basketball. As the team statistician and manager of the varsity basketball team at Medfield High, William helps to set the tone on a nightly basis for the Big Blue. He never misses a game, and his commitment to the team is as important as the commitment made by the players and coaches. I have always admired William's fight and determination, which is why I am excited to be running in the Falmouth Road Race for my second year on August 21st as a member of the Cure SMA team.
I’m supporting Cure SMA because spinal muscular atrophy is the number one genetic cause of death for infants, and approximately 1 in every 50 individuals is a genetic carrier for SMA. But there’s great reason for hope. We know what causes SMA and what we need to do to develop effective treatments.
We’re getting closer and closer to an FDA-approved therapy, with 17 ongoing drug programs—and six of those are now in clinical trials.
I’ve chosen Cure SMA because they are uniquely positioned to direct funds to where they can make the greatest difference as quickly as possible. They’ve already invested $57 million in research.
They also provide vital support for families living with SMA, improving their quality of life today. And every year they host the largest SMA conference in the world, bringing families together with the leading SMA researchers.
Making a donation to Cure SMA is easy, secure and completely confidential. Just click on the link, or copy and paste the URL into your web browswer, and follow the steps! There is no such thing as a donation that is too small, so please feel free to donate any amount you feel comfortable with. All donations are accepted and appreciated greatly as we try and surpass our 2015 effort of raising over $3,000.
Thank you again for your personal gift to support my efforts to fund vital research and family support programs for those affected by SMA, and for supporting my good friend William.