Help support Cure SMA and Team William!
Please join us to support Cure SMA by making a contribution for Team William's run in the 2016 Rock n Roll Philadelphia 5k.
My son William was initially diagnosed with SMA on July 20th, just shy of 3 months old. Since then, it has been a whirlwind of emotions, doctors appointments, personal education, physical therapy, self-thought and family time (the list could go on and on!) for both me & Kelly. The two of us would not have been able to make it this far without the support of family, friends and loved ones near & far.
But we also owe a great deal of gratitude for the support we have and continue to receive from the Cure SMA organization. From our initial contact, they have been nothing short of spectacular.
The organization supports patients and their families on a number of fronts; including care packages of toys and care items, information packets related to William's health care now & into the future, detailed updates on disease research & clinical therapy trials, updates on patient & family advocacy efforts as well as local chapter support groups.
Cure SMA has not only had an impact within its patient community, but also in the world of science through their directed efforts to fund research ($57 million total to date). If you have a few minutes, take a read through of some of the updates on the Cure SMA site. Breakthrough therapies for patients may be right around the corner, and someday maybe even a cure. No matter how long or short potential treatments may take to come to fruition, patients & families will continue to need support and advocacy from this community to ensure patient interests are always at the forefront.
Our family is only a few weeks in to what hopes to be a long journey within the SMA community. Help us to support an organization that has done so much for us already, and will continue to do so for us & many more into the future.