Supporting Emma's fight against SMA.
As we prepare for what's been coined "The Toughest Event on the Planet" - we are inspired by those who take on obstacles that are even more challenging each and every day.
This year, we are teaming up on behalf of our close friend's daughter, Emma, who was diagnosed with Spinal Muscular Atrophy (SMA) at the young age of 1. Today at age 10, Emma has been robbed of her physical strength because of this debilitating genetic disease that continues to atrophy her arm and leg muscles.
SMA affects the control of muscle movement. It is caused by a loss of specialized nerve cells, called motor neurons, in the spinal cord and the part of the brain that is connected to the spinal cord (the brainstem). The loss of motor neurons leads to weakness and wasting (atrophy) of muscles used for activities such as crawling, walking, sitting up, and controlling head movement. In severe cases of spinal muscular atrophy, the muscles used for breathing and swallowing are affected.
On October 8th, our team will tackle Tough Mudder Tri-state in Englishtown, NJ, with the goal of raising $5K to support SMA.
The money raised will be donated to CURE SMA, an organization that funds the discoveries that will lead to a treatment and cure for SMA. CURE SMA also funds programs that improve quality of life for children and families affected by SMA.
Please consider supporting this noble cause - no amount is too small! Every penny counts and all donations are tax deductible.
We thank you for any support you can offer in our effort to defeat SMA!