Cure SMA Fundraiser
Hi all! This year I wanted do something different for my birthday. As many of you know my sister Laura has Spinal Muscular Atrophy, or SMA, a genetic disease which limits her physical strength by affecting the motor nerve cells in the spinal cord. Currently there are no approved treatments for SMA, however, over the past few years scientists funded by the Cure SMA organization have had multiple breakthroughs. We now know exactly what causes SMA and the organization is funding multiple drug programs with the hope one eventually will lead to a cure.
This year I'm holding my birthday in Laura's honor with the goal of adding to the momentum of finding a cure.
Thanks for your support!