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UPB Walk and Roll to CURE SMA ~ September 30, 2017 at 11 am

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Kyle Bickel, SMA type 3
Kyle Bickel, SMA type 3

Dear Friends and Family,

Please help the United Parish of Bowie raise money to find a cure for Spinal Muscular Atrophy, the number 1 genetic killer of infants.  Our son, Kyle, is 13 years old and a strong Type 3.  With the tremendous support we received at last year's UPB vs SMA fundraiser along with other fundraisers throughout the country over the years, the first drug, Spinraza, was approved by the FDA in December 2016.  Thankfully our son has already received four treatments and he is scheduled to receive his fifth September 28th.  

Spinraza works to stop the progression of this devastating disease and may potentially improve strength. This drug has been life changing for those with SMA, especially for those children with Type 1.  However, this is not a cure and there is still work to do! Researchers are working to find more treatment options and eventually, a cure.  Please help us! All funds raised at this event will go directly to Cure SMA. Any amount donated would be wonderful!

The United Parish of Bowie will be hosting a Walk and Roll to CURE SMA on Saturday, September 30, 2017 at 11:00 am. Please bring your family and friends and join us for food, games, a bounce house, face painting, crafts and more! 

We hope to see you on September 30th! (UPB 2515 Mitchellville Road Bowie, MD 20716)

 

Love,

Matt and Chrissie Bickel

 

 

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Personal Progress:
of Goal
$4,540 Raised
$8,000.00
Fundraising Honor Roll
Our Little Jewels Inc
$500
Eric Bickel
Shirley Bickel
$200
Carol Zuber
$200
Nikki Hillary
$150
Maureen Grayzeck
$100
Ronald Klotz
$100
Medessa Burian
$100
Kevin Eades
$100
KATHERINE MONTAGUE
$100
Florence Burian
Mary Munnelly
$100
Gene Barbato
$100
Sharon Scarselli
$100
Victor Shin
$100
Ronald Showell
$100
Mark Smith
$100
Janice Sheppard
$100
Sudha Hillary
$100
Linda Corley
$100
Lourdes Flaim
$100
Susan Kennedy
$100
Charissa Loera
Joe & Elaine Strauss
$100
Joanne Sprunk
$100
Mirtha Mcgovern
$75
Anne & Jim Dillon
$50
Shane Denman
$50
Brenda Gauna
$50
Nicholas Mautino
$50
Dennis Burian
Jennifer Windsor
$50
Robin Burgess
$50
Sharon Pasterick
$50
Richard Brzozowski
$50
Natifia Mullings
$50
James Palmer
$50
James Roper
$50
Nicole Wilson
$50
Marianne Markey
$50
Phaedra McNair
$30
Jenny Hsieh
$30
Lynn Lipsey
Anita Garcia
Wilma Bishop Dean
$25
Matthew Buckley
Debbie Del Busto
$25
Michele Neville
$25
Christine Bickel
$25
Jim Monahan
$25
Elizabeth Fine
$25
Mike Mastrantuono
$25
Daniel Beall
$25
Elizabeth Ruddy
$25
Michele Vicino-Coleman
$25
CustomInk LLC
$20
John Oputa
$10

Cure SMA

Cure SMA
925 Busse Road, Elk Grove Village, IL 60007

(800) 886-1762

info@curesma.org

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