2017 St. Louis Walk-n-Roll
Tower Grove Park
Welcome to My Personal Page
Please join me and support Cure SMA by making a contribution to my personal fundraising page.
I’m supporting Cure SMA because their main purpose is to fund research to find a cure for SMA. I also support Cure SMA because spinal muscular atrophy is the number one genetic cause of death for infants.
While Sarah is doing great, living with SMA is still a huge challenge. Things that you and I take for granted are very difficult for Sarah or something Sarah can not even do (brushing hair, dressing, coughing, just to name a few). We are very hopeful that a treatment will soon be available for Sarah! This is something we never thought would happen in her lifetime.
Research has provided the knowledge of what causes SMA and what is needed to be done to develop effective treatments. In December, the FDA approved the first ever therapy for SMA AND there are 17 other ongoing drug programs—and six of those are now in clinical trials. The approved drug therapy is an injection into the spine, and research has not yet found a way to safely administer the drug to those who have had spinal fusion surgery (Sarah), but that doesn't mean they won't find a way!
Cure SMA is uniquely positioned to direct funds to where they can make the greatest difference as quickly as possible. They’ve already invested $57 million in research. Our family has always donated to Cure SMA, but this year we are asking others to support Cure SMA because they are getting so, so close!
Making a donation to Cure SMA is easy, secure and completely confidential. Just click on the link and follow the steps!
Thank you again for your personal gift to support my efforts to fund vital research for those affected by SMA.