Our New Year's Resolution - FIND A CURE!
For us, every holiday season includes a visit to the cemetery. This year marked a sad milestone: five years since we lost our beloved little boy Wyatt Teagan Arnold to Spinal Muscular Atrophy. So our goal this giving season is $1,000 for every year we've missed with our little boy = $5,000. PLEASE help us get there!
Our children know their big brother as an angel who gets the balloons they release into the sky when we visit his grave. They know he is in heaven, "high up in the sky." But he is still very present with us, every day, reminding us to be thankful for what we have and to help others, especially those families facing a similar fate.
Wyatt died right before Christmas. Just the other day, I heard of the passing of two more SMA angels and it saddens me to know very much how their holidays are going to be this year.
There is, fortunately, some very good news. Right now there's a drug in clinical trials that is showing incredible promise. I have seen babies with the same type of SMA that Wyatt had move their arms and legs freely, sit up mostly unassisted and hold up their heads - things Wyatt never even came close to doing. Clinical trials are expensive. Research is expensive. And CureSMA has been an incredible support in funding the development of this and other treatments in the pipeline to cure and treat SMA.
CureSMA also provides support to families. It gives them information on how to find the right doctors, what your treatment options are and connects you with resources to get low-cost or even free equipment.
So, please remember CureSMA in your holiday and year-end charitable giving. And remember Wyatt. In fact, even if you don't donate, please just think of Wyatt and check out his sly little grin. Because that's how the little dude lives on, and that's really all any mom could ask for.
Happy Holidays and here's wishing you a happy, healthy New Year.