Running for Dylan
Hi! I am running in the San Antonio Rock & Roll 10K on Saturday, December 3rd to raise funds for a great organization. Cure SMA (formerly called Families of SMA) was truly there for my family when my youngest son, Dylan Richard Speece, was diagnosed with Spinal Muscular Atrophy Type I. They provided educational materials, an amazing gift box with supplies and toys suited for an SMA child, and valuable in-person support through the Texas chapter. Although Dylan is no longer with us, we remain grateful and enthusiastic supporters for the work they do.
I’m supporting Cure SMA in honor of Dylan because:
1) Spinal Muscular Atrophy is the number one genetic cause of death for infants, and approximately 1 in every 50 individuals is a genetic carrier for SMA.
2) They’ve already invested $59 million in research, and they're getting very close to an FDA-approved therapy, with 18 ongoing drug programs—seven of which are now in clinical trials.
3) They provide vital support for families living with SMA, improving their quality of life today. And every year they host the largest SMA conference in the world, bringing families together with leading SMA researchers.
Making a donation to Cure SMA is easy, secure and completely confidential. Just click on the link and follow the steps!
Please join me and support Cure SMA by making a contribution to my personal fundraising page.Thank you again for your gift--it honors my little boy and blesses my family!