Welcome to My Personal Page
Please join me and support Cure SMA by making a contribution to my personal fundraising page.
I'm supporting Cure SMA because in 2011 my husband (Peter Desroches) and I lost our first son to SMA at just 8 and 1/2 months old. Every year since his passing we have organized a fundraiser in his memory because spinal muscular atrophy is the number one genetic cause of death for infants, and approximately 1 in every 50 individuals is a genetic carrier for SMA. But there’s great reason for hope. We know what causes SMA and what we need to do to develop effective treatments.
Researchers are getting closer and closer to an FDA-approved therapy, with 17 ongoing drug programs—six of those now in clinical trials.
I’ve chosen Cure SMA because they are uniquely positioned to direct funds to where they can make the greatest difference as quickly as possible. They’ve already invested $57 million in research. It is our goal to see the day that this disease has a treatment and a cure so that others do not have to endure the devastating loss of a child to this disease like we did.
CureSMA also provides vital support for families living with SMA, improving their quality of life today. And every year they host the largest SMA conference in the world, bringing families together with the leading SMA researchers.
Making a donation to Cure SMA is easy, secure and completely confidential. Just click on the link and follow the steps!
Thank you again for your personal gift to support my efforts to fund vital research and family support programs for those affected by SMA.