Walk N Roll Event Title

2016 Go Miller Go 5K

Saturday, September 10, 2016 | 8:30AM - 11:00AM
James Island County Park | Charleston, SC

Why We Walk

Miller balloon_why we.jpg

We created this event because our son, Miller, was diagnosed with SMA type II in 2013, at the age of 15 months. Before his diagnosis we had never heard of SMA or had it in the family (to our knowledge). When we were told those three little words we were led to believe that he would most certainly have a short, unhappy life. We quickly learned that his joy for life hadn't changed a bit, and then started meeting other children and even adults that were living very happy lives with SMA. Through his life and example we hope to raise awareness of SMA as well as raise funds to help find a treatment and a cure!

Miller has not only taught us as his parents many lessons about what is truly important in this life, but we know he has touched so many that have gotten to know him with his sweet smile and easy going personality, regardless of the physical limitations he faces. While we desperately want a cure for this cruel disease so that one day no parent will ever have to hear the words spinal muscular atrophy and fear what that means for their child, we also want to share the special message that Miller's life exemplifies, that people with SMA can live very happy, independent and productive lives, just differently than some.

“Finish Strong” is our mantra now. Strength comes in many forms, both physical and mental, and the finish is different for each individual. Our adaptation to our own strengths and weaknesses, and our attitude, rather than how quickly or efficiently we can get to the end, that is what truly makes for a great journey! Always finish strong!

Cure SMA is dedicated to the treatment and cure of Spinal Muscular Atrophy (SMA)—a disease that takes away a person’s ability to walk, eat, or breathe. 8 million Americans carry the gene that causes SMA, and it is the number one genetic cause of death for infants.

Since 1984, we’ve directed and invested in comprehensive research that has shaped the scientific community’s understanding of SMA. We are currently on the verge of breakthroughs in treatment  that will strengthen our children’s bodies, extend life, and lead to a cure.

We have deep expertise in every aspect of SMA—from the day-to-day realities to the nuances of care options—and until we have a cure, we’ll do everything we can to support children and families affected by the disease.

Learn more about how you can help us reach a treatment and cure at www.cureSMA.org.

Donate Find Mobile
Find an individual/Team

Total Raised:

$51,403.12

114% Raised of $45,000.00 Goal